00:00:43.320 --> 00:00:47.240
DECEMBER 7, 2019

00:00:49.480 --> 00:00:51.320
Hi, Enric.
how are you?

00:00:51.520 --> 00:00:55.040
I'm Dr. Laura Ramos,
calling from Uruguay.

00:00:55.640 --> 00:00:59.800
I am currently handling
a very complex clinical case

00:00:59.960 --> 00:01:02.600
and I thought
I should dare ask you for help.

00:01:03.120 --> 00:01:06.600
This is a patient with
amyotrophic lateral sclerosis

00:01:06.720 --> 00:01:09.640
who insists on being euthanized.

00:01:10.920 --> 00:01:14.840
His name's Fernando Sureda
and he's very well known

00:01:14.960 --> 00:01:18.520
and very influential here in Uruguay.

00:01:19.040 --> 00:01:22.120
He has spoken
to politicians and the media,

00:01:22.240 --> 00:01:24.840
and he wants to support
a legislative bill

00:01:24.960 --> 00:01:27.800
to legalize
euthanasia in our country,

00:01:28.400 --> 00:01:31.880
and be the first to be euthanized.
Imagine that!

00:01:32.800 --> 00:01:37.520
I think it’ll be very good for him
to talk to you, if you can.

00:01:39.880 --> 00:01:43.600
Well, umm, may I give him your email address
so he can write to you?

00:01:43.720 --> 00:01:46.440
Oh, and thank you very much in advance.

00:01:50.160 --> 00:01:52.760
Fernando Sureda
to benitoenric

00:01:52.880 --> 00:01:55.120
Friend: I’m from uruguay!

00:01:55.240 --> 00:02:03.240
Please confirm this message
for future communications!

00:02:03.360 --> 00:02:05.760
Fernando Sureda, Accountant.

00:02:06.880 --> 00:02:09.440
Enric Benito Oliver
to me

00:02:09.560 --> 00:02:12.120
OK.

00:02:12.240 --> 00:02:14.760
Enric Benito

00:02:17.160 --> 00:02:21.240
Dr. Benito: my ALS keeps me from typing.

00:02:21.400 --> 00:02:24.240
I’ll try a video tomorrow.

00:02:24.360 --> 00:02:25.720
Best,

00:02:25.840 --> 00:02:27.600
Fernando Sureda

00:02:28.480 --> 00:02:31.680
Good morning, Doctor Benito.

00:02:32.400 --> 00:02:34.880
I’m fit to die,

00:02:35.320 --> 00:02:39.480
and the big issue, doctor,
is that palliative care...

00:02:41.000 --> 00:02:43.560
isn’t in a position to let me die.

00:02:44.080 --> 00:02:48.080
I'm in a position to start
the dying process,

00:02:50.920 --> 00:02:53.520
I like that term you coined.

00:02:54.160 --> 00:02:57.080
But palliative care can't do anything.

00:02:57.800 --> 00:03:00.120
Why?
Because I’m way ahead.

00:03:00.600 --> 00:03:05.040
I'm ready but I'm the healthiest
terminally ill person in the world.

00:03:05.560 --> 00:03:10.960
The only thing I have so far is...

00:03:13.800 --> 00:03:16.960
totally disabled legs,

00:03:17.720 --> 00:03:21.560
my arms are 50-60% disabled,

00:03:22.800 --> 00:03:28.480
and the muscles in my chest
have started to weaken,

00:03:29.040 --> 00:03:32.880
which makes me cough...

00:03:33.600 --> 00:03:36.360
with much less force,

00:03:37.320 --> 00:03:41.920
but I can't make a phlegm
go to my lungs

00:03:42.320 --> 00:03:44.360
and get infested.

00:03:44.760 --> 00:03:48.000
I can’t do any of the things
necessary to die.

00:03:48.440 --> 00:03:52.880
As I was joking with Laura,

00:03:53.080 --> 00:03:56.920
my suitcase is full of illnesses
I’ve caused to myself,

00:03:57.040 --> 00:04:00.920
Illnesses I’ve fed myself
for over 50 or 60 years.

00:04:01.320 --> 00:04:04.760
Whether it’s lung cancer,

00:04:05.200 --> 00:04:07.960
a heart attack...

00:04:08.120 --> 00:04:10.160
A stroke.

00:04:10.520 --> 00:04:13.240
Whatever you want to call them,
I have several.

00:04:13.920 --> 00:04:17.880
But I’m absolutely blameless for ALS,

00:04:18.000 --> 00:04:21.760
the only disease
that got ahead of the rest

00:04:22.120 --> 00:04:25.560
and is performing its task perfectly,

00:04:25.800 --> 00:04:26.960
but slowly.

00:04:27.400 --> 00:04:29.440
And a slow death...

00:04:29.560 --> 00:04:31.360
isn’t for me, doctor.

00:04:31.880 --> 00:04:35.680
because I’ll end up
with a claustrophobic disorder,

00:04:36.000 --> 00:04:42.480
24 x 7 in bed,
365 days a year.

00:04:43.520 --> 00:04:46.400
Therefore, doctor,
this is my problem:

00:04:46.800 --> 00:04:50.800
what can we do when a patient

00:04:51.840 --> 00:04:56.760
is ready, along with his family,
to transcend

00:04:57.560 --> 00:05:01.200
but we lack a mechanism
for him to do so?

00:05:02.840 --> 00:05:05.560
Hello Fernando.
I’m home now, in Mallorca.

00:05:05.880 --> 00:05:10.400
This dilemma of yours...
Really is an opportunity

00:05:11.120 --> 00:05:17.400
to, let’s say, envisage,
through these videos precisely,

00:05:17.720 --> 00:05:21.880
a process you’re taking for granted.

00:05:22.240 --> 00:05:23.680
But I’m not so sure about it.

00:05:23.840 --> 00:05:27.240
As a professional,
I must confirm,

00:05:27.480 --> 00:05:30.360
check to what extent

00:05:30.600 --> 00:05:32.880
this claim of yours...

00:05:33.040 --> 00:05:36.520
That you and your family
are perfectly prepared...

00:05:36.680 --> 00:05:38.880
I have my reservations,
my doubts.

00:05:39.000 --> 00:05:43.680
In fact, I’d say I’m quite sure
that’s not absolutely true.

00:05:44.280 --> 00:05:47.040
I’d like to talk to you and confirm it.

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This isn’t a challenge,
but a proposal to see each other

00:05:51.240 --> 00:05:57.080
and see how far along you really are.

00:05:57.280 --> 00:06:01.160
I think, on a cognitive level,
you’ve understood it,

00:06:01.440 --> 00:06:03.880
but you haven’t experienced it,
lived it.

00:06:09.840 --> 00:06:14.920
THERE IS A DOOR THERE

00:06:21.320 --> 00:06:24.760
Well Benito,
even if you can’t believe it,

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because I can’t myself,

00:06:27.320 --> 00:06:31.320
I’ve managed to install Zoom
on Inés’ phone

00:06:31.440 --> 00:06:34.360
and on my computer as well.

00:06:34.960 --> 00:06:38.960
You have to call me
so we can figure out how to get connected.

00:06:40.400 --> 00:06:45.760
If our old age gets in the way,
we can use WhatsApp.

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Fernando, first of all,

00:06:49.440 --> 00:06:53.520
congratulations
on your technological progress.

00:06:54.280 --> 00:06:57.520
Our body has an age,
but we’re ageless.

00:06:57.680 --> 00:06:59.560
I’ll explain that later.

00:06:59.720 --> 00:07:02.400
Best wishes, we’ll talk later.

00:07:05.920 --> 00:07:08.800
THROWING IN THE TOWEL

00:07:09.080 --> 00:07:13.120
So we’ll start recording from now on.

00:07:13.720 --> 00:07:18.960
First, I think it’s important
that we get to know each other better

00:07:19.200 --> 00:07:22.120
because you tell me some things and...

00:07:22.360 --> 00:07:25.080
Laura has told me some other things,
but not much.

00:07:25.280 --> 00:07:29.960
I’d like to ask you some questions
about your personal life.

00:07:30.080 --> 00:07:31.400
As a person...

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You have family, children, brothers...

00:07:35.120 --> 00:07:39.480
Well,
I’m a son and a brother.

00:07:39.640 --> 00:07:43.200
My mother is still with me

00:07:43.320 --> 00:07:45.680
and my father died young,

00:07:45.800 --> 00:07:48.440
of lung cancer at 56.

00:07:49.160 --> 00:07:51.960
I have a brother and...

00:07:52.680 --> 00:07:55.360
An angel called Inés, my wife,

00:07:55.520 --> 00:07:56.760
and two children.

00:07:57.040 --> 00:08:01.640
Each one has a couple of kids,
making for four grandchildren.

00:08:01.800 --> 00:08:04.120
You’re proud of your family, content.

00:08:04.240 --> 00:08:06.200
Absolutely, fully.

00:08:06.960 --> 00:08:10.000
Having a wife you call an angel...

00:08:10.120 --> 00:08:12.600
I think in these times,
at this age,

00:08:12.720 --> 00:08:14.080
I can relate to you.

00:08:14.280 --> 00:08:18.320
This Saturday... No, not Saturday,
Sunday the 22nd

00:08:18.600 --> 00:08:21.960
will mark 46 years
married to the same woman,

00:08:22.080 --> 00:08:24.640
she still puts up with me
and says she’s in love with me

00:08:24.880 --> 00:08:27.000
which is incomprehensible.

00:08:27.120 --> 00:08:29.480
-46 years.
-We already reached 46,

00:08:29.600 --> 00:08:31.680
this last October 31st.

00:08:31.800 --> 00:08:35.120
Imagine that.
You’re a few months ahead of me.

00:08:35.440 --> 00:08:37.600
We dated for six years before.

00:08:37.720 --> 00:08:40.560
-We met 52 years ago.
-Wow.

00:08:41.200 --> 00:08:44.800
You were also born in ‘49?
What month?

00:08:45.240 --> 00:08:46.760
September 25th.

00:08:46.960 --> 00:08:51.080
You’ll have to respect me there.
I’m three or four months older.

00:08:51.200 --> 00:08:52.880
I was born in May.

00:08:53.120 --> 00:08:54.160
Very well.

00:08:54.280 --> 00:08:56.720
In your video you say

00:08:56.920 --> 00:08:59.800
you have it all sorted,
you see it all clearly,

00:09:00.200 --> 00:09:02.960
you know exactly what’ll happen.

00:09:03.280 --> 00:09:07.720
At one point you say:
"A slow death isn’t for me".

00:09:08.760 --> 00:09:11.360
-Exactly.
-Who is this “me” you mention?

00:09:12.520 --> 00:09:13.640
Me is me.

00:09:14.160 --> 00:09:17.120
Don’t get philosophical with me, Enric.

00:09:17.520 --> 00:09:20.200
To me,
philosophy has always seemed a bit...

00:09:20.400 --> 00:09:21.480
like bullshit.

00:09:21.680 --> 00:09:23.240
Who is this me?
Me.

00:09:23.440 --> 00:09:26.120
A slow death
isn’t for Fernando Sureda.

00:09:26.360 --> 00:09:28.720
Fernando Sureda
is a name, right?

00:09:29.200 --> 00:09:30.840
-Yes.
-Well.

00:09:31.960 --> 00:09:35.320
There’s a consciousness
behind that name, right?

00:09:35.640 --> 00:09:36.680
Yes.

00:09:36.920 --> 00:09:39.000
And it’s aware of what’s going on.

00:09:39.360 --> 00:09:42.280
-Yes.
-Does that consciousness have a name?

00:09:43.440 --> 00:09:44.880
No, just consciousness.

00:09:45.040 --> 00:09:47.880
We start to see a “me” here,
named Fernando,

00:09:48.160 --> 00:09:51.520
and a nameless consciousness,
which defines you.

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Laura, darling,
can you sit still?

00:09:58.920 --> 00:10:02.360
The problem is the computer...

00:10:02.480 --> 00:10:04.480
I think you’ve made it dizzy.

00:10:04.920 --> 00:10:07.240
-Good afternoon.
-Go ahead.

00:10:08.600 --> 00:10:10.360
I’ve lost you now.

00:10:12.520 --> 00:10:13.480
Hello?

00:10:16.480 --> 00:10:19.680
Can we continue, can you hear me?

00:10:20.080 --> 00:10:21.360
-Perfectly.
-Perfect.

00:10:21.480 --> 00:10:24.640
A question, Fernando,
how do you fall asleep at night?

00:10:25.280 --> 00:10:28.520
I take a sleeping pill
and have no trouble sleeping 5 hours.

00:10:28.640 --> 00:10:30.880
-Okay.
-I have to take a pill.

00:10:31.000 --> 00:10:34.160
Do you sleep a bit during the day too?

00:10:34.360 --> 00:10:37.120
A bit during the day because...

00:10:37.480 --> 00:10:40.800
the bed makes me do it,
I’m here 24 hours a day.

00:10:40.960 --> 00:10:42.040
Sure.

00:10:42.160 --> 00:10:45.520
I sleep half an hour, an hour.

00:10:45.800 --> 00:10:51.760
And what do you do?
Read, listen to music, paint, anything?

00:10:52.920 --> 00:10:56.600
Well, I listen to music.
My arms won’t let me paint.

00:10:56.920 --> 00:10:57.960
Right.

00:10:58.080 --> 00:11:01.760
I can’t dial a phone, paint...
I can’t read!

00:11:01.880 --> 00:11:04.160
They haven’t invented a lectern

00:11:04.280 --> 00:11:07.520
that would let me read
a newspaper or a book.

00:11:07.640 --> 00:11:10.400
The angel I mentioned
reads me the newspaper.

00:11:10.640 --> 00:11:12.280
I forgot to mention that.

00:11:12.400 --> 00:11:17.640
She’s what I most love in this world,
and I’m fucking it up, Benito.

00:11:17.760 --> 00:11:18.760
No, no.

00:11:18.920 --> 00:11:19.880
A question, Fernando,

00:11:20.120 --> 00:11:25.360
about your expectations
for the time you think you’ve got left.

00:11:25.680 --> 00:11:28.120
I’ve spoken to the doctors...

00:11:29.160 --> 00:11:31.120
And they don’t have answers.

00:11:31.320 --> 00:11:32.760
Nothing from the doctors,

00:11:32.880 --> 00:11:35.480
but my question is more direct.

00:11:37.080 --> 00:11:40.080
What does your intuition tell you?

00:11:40.360 --> 00:11:42.480
I give myself 6-8 months,

00:11:42.920 --> 00:11:46.160
before needing a tracheotomy,

00:11:46.440 --> 00:11:48.440
which I will refuse, of course.

00:11:48.720 --> 00:11:52.000
Have you thought about what you’ll want

00:11:52.120 --> 00:11:55.400
when you start
to have difficulty breathing?

00:11:55.960 --> 00:11:57.840
Yes, I discussed it with Laura.

00:11:58.000 --> 00:12:00.440
Palliative care and final sedation.

00:12:00.600 --> 00:12:03.120
A big kiss and on to the next world.

00:12:04.280 --> 00:12:06.320
-Can I give you an example?
-Yes.

00:12:06.520 --> 00:12:11.720
Imagine you’re in a boxing ring.

00:12:12.240 --> 00:12:13.840
You’re my manager,

00:12:13.960 --> 00:12:18.760
and the fight is supposed to last
12 rounds.

00:12:19.360 --> 00:12:22.800
They’re pounding my face
in the second round,

00:12:23.040 --> 00:12:27.800
destroying my face, eyes,
eyebrows, lips.

00:12:28.040 --> 00:12:31.680
On the corner I tell you:
"Throw in the towel."

00:12:31.840 --> 00:12:35.440
You reply: "No, don’t be a jerk,
you can still turn it around.

00:12:35.800 --> 00:12:38.760
Let them bust your face in
until the end.”

00:12:39.000 --> 00:12:40.920
That’s what I don’t want.

00:12:42.120 --> 00:12:43.600
No... Well...

00:12:43.920 --> 00:12:47.280
My message is exactly the opposite.

00:12:47.440 --> 00:12:51.760
Thanks for the example,
it’s a wonderful example.

00:12:52.000 --> 00:12:54.560
What I’m saying is:
stop fighting,

00:12:56.800 --> 00:12:58.040
stop struggling,

00:12:59.520 --> 00:13:03.280
stop wanting to control the disease
and the process,

00:13:03.480 --> 00:13:06.000
or how the pieces should fall in.

00:13:06.280 --> 00:13:07.760
Let it go, let yourself go.

00:13:07.920 --> 00:13:11.560
Right now, throw in the towel
and I’ll throw it in for you.

00:13:11.840 --> 00:13:14.920
We’ll both give up,
throw in the towel...

00:13:15.040 --> 00:13:17.400
Stop resisting what’s going on.

00:13:17.680 --> 00:13:18.800
You’re a genius,

00:13:18.920 --> 00:13:22.320
you turned the story around,
180 degrees.

00:13:22.680 --> 00:13:25.720
Well, you set it up for me.

00:13:25.880 --> 00:13:29.000
You’re punching yourself.

00:13:29.360 --> 00:13:31.360
You’re your opponent.

00:13:31.920 --> 00:13:35.760
Part of you is fighting against...
Life.

00:13:35.880 --> 00:13:39.080
Life wants you to stop struggling,

00:13:39.200 --> 00:13:41.840
accept, let go, give in...

00:13:42.080 --> 00:13:43.880
Let yourself be cared for.

00:13:44.120 --> 00:13:46.640
Let’s see how we can find

00:13:46.880 --> 00:13:50.880
a deeper version of Fernando,

00:13:51.120 --> 00:13:54.600
one which today's Fernando
is still unaware of.

00:13:55.320 --> 00:13:57.120
You don’t have to die to get there.

00:13:57.240 --> 00:14:01.520
You can reach a higher level
of consciousness, awake,

00:14:01.760 --> 00:14:04.200
precisely by

00:14:04.480 --> 00:14:08.120
letting go, accepting, giving in.

00:14:08.400 --> 00:14:13.280
Behind this
"I want it to end now" request

00:14:15.080 --> 00:14:17.520
let me tell you,
there’s fear.

00:14:18.240 --> 00:14:19.760
-Fear?
-Yes.

00:14:20.880 --> 00:14:22.200
No, Benito.

00:14:22.760 --> 00:14:26.440
What you’re proposing
seems like cowardice.

00:14:26.760 --> 00:14:31.400
That... I didn’t...
I never wanted to accept it.

00:14:31.600 --> 00:14:36.880
Accept the possibility of letting go,
give in, let yourself be cared for,

00:14:37.680 --> 00:14:39.760
see tenderness in the care
you get,

00:14:39.880 --> 00:14:43.080
Not the miserable state of being taken
to the bathroom,

00:14:43.200 --> 00:14:44.680
having your teeth brushed,

00:14:44.960 --> 00:14:48.400
but the marvel
of having someone do that,

00:14:48.520 --> 00:14:52.600
with a body that isn’t you,
it’s something you wear.

00:14:52.760 --> 00:14:54.080
But you’re not this body.

00:14:54.240 --> 00:14:56.520
This body will turn to shit.

00:14:56.960 --> 00:14:59.320
But you’re not your body, Fernando.

00:14:59.560 --> 00:15:00.800
Your consciousness,

00:15:01.080 --> 00:15:04.280
that consciousness that knows
neither limits nor time.

00:15:04.400 --> 00:15:08.320
It’s what you’ll find when you let go and
reach the other side of the tunnel.

00:15:08.480 --> 00:15:10.200
You can explore it now.

00:15:13.640 --> 00:15:14.960
It feels like cowardice.

00:15:15.080 --> 00:15:17.360
Look how lucky I am,

00:15:17.480 --> 00:15:20.080
they drag me to the bathroom
like a puppet, like a bag.

00:15:20.200 --> 00:15:24.680
How fortunate that my wife wipes my ass
and brushes my teeth!!

00:15:24.880 --> 00:15:26.880
And my son
takes me to the backyard.

00:15:27.040 --> 00:15:29.080
Shit,
what a lucky guy I am!

00:15:29.200 --> 00:15:30.560
I’m a lucky guy.

00:15:30.840 --> 00:15:35.360
That feels like bullshit,
or however you say it in Spain.

00:15:37.360 --> 00:15:40.720
You’re taking it out of context
and ridiculing it,

00:15:40.840 --> 00:15:44.240
from a position
that doesn’t allow you to...

00:15:44.880 --> 00:15:47.440
It feels like weakness to you.

00:15:47.560 --> 00:15:50.280
Or a copout, as you said, right?

00:15:50.560 --> 00:15:52.960
-Exactly...
-Yes, exactly.

00:15:53.160 --> 00:15:55.680
I can understand what you’re saying.

00:15:55.880 --> 00:15:59.600
We were raised the same way,
in the same times.

00:15:59.760 --> 00:16:01.040
I can relate to you.

00:16:01.280 --> 00:16:03.280
-Benito.
-Hello.

00:16:03.520 --> 00:16:05.920
-I’m Inés.
-Inés, how are you?

00:16:06.120 --> 00:16:08.320
Can I ask you a question?

00:16:09.160 --> 00:16:10.360
Of course.

00:16:10.720 --> 00:16:14.720
Could you take care of this man
even if he lived for two more years?

00:16:15.640 --> 00:16:19.320
Yes, of course,
if my body will resist it,

00:16:19.880 --> 00:16:21.080
Of course.

00:16:21.360 --> 00:16:23.800
He's not alone in this,
but with us all.

00:16:23.920 --> 00:16:27.280
Those who love him
have their own processes.

00:16:27.640 --> 00:16:30.280
All together, we can turn this around.

00:16:30.560 --> 00:16:34.840
Rather than a disaster, a damn ordeal,

00:16:35.200 --> 00:16:40.040
this can teach us about
what this is all about

00:16:40.160 --> 00:16:41.800
and bring him peace.

00:16:42.000 --> 00:16:43.040
Of course.

00:16:43.160 --> 00:16:49.360
I feel working with you all
is a privilege.

00:16:49.480 --> 00:16:51.520
I’m 70 years old.
At my age

00:16:51.640 --> 00:16:53.480
I’ve also done everything.

00:16:54.320 --> 00:16:57.680
But I work to teach people
to care for these stories.

00:16:58.560 --> 00:16:59.920
I think life,

00:17:00.040 --> 00:17:03.240
or God,
if you want to think of it that way...

00:17:03.600 --> 00:17:07.200
Has put us in touch
to do something meaningful,

00:17:07.400 --> 00:17:10.640
that can help other people,
starting with him,

00:17:11.000 --> 00:17:12.960
but that can also help others.

00:17:13.440 --> 00:17:16.600
-In short, that’s my intention.
-Good.

00:17:20.320 --> 00:17:26.520
Hi Fernando, today I have watched again
the video of our first conversation.

00:17:26.640 --> 00:17:29.720
I think it was a good idea to record it,

00:17:29.840 --> 00:17:33.720
and if you agree I would like
to continue with this method.

00:17:33.840 --> 00:17:35.560
Enric Benito

00:17:38.240 --> 00:17:41.160
Thank you my friend, OK for me.

00:17:41.280 --> 00:17:44.200
I look forward
to our meeting on the 28th.

00:17:44.320 --> 00:17:48.680
Can’t wait to find
new questions to your solutions. Best.

00:17:48.880 --> 00:17:51.760
Fernando Sureda, Accountant.

00:17:52.760 --> 00:17:54.400
The question is...

00:17:54.760 --> 00:17:59.160
whether in our meetings,
our dialogues...

00:17:59.480 --> 00:18:03.080
There are surely several components.
There's a certain hope here,

00:18:03.200 --> 00:18:04.720
let's call it hope.
There’s some light of hope.

00:18:04.920 --> 00:18:08.040
Talking to this guy...
What do you expect from this?

00:18:08.280 --> 00:18:12.120
To convince me to come over

00:18:12.240 --> 00:18:14.640
and give you an injection
to end this soon?

00:18:15.000 --> 00:18:19.920
Or that you can make sense
out of what's happening to you?

00:18:20.080 --> 00:18:22.120
What’s your idea about talking to me?

00:18:23.200 --> 00:18:27.520
What I expect, after reaching out
to someone like you, Benito,

00:18:27.680 --> 00:18:30.160
is to keep...

00:18:31.200 --> 00:18:36.760
a conversation,
a dialogue, a dialectic

00:18:37.160 --> 00:18:41.120
that will even give me something
to look forward to:

00:18:41.560 --> 00:18:45.440
Such and such a day
I have a conference with Benito,

00:18:45.640 --> 00:18:48.680
and to talk and exchange opinions,

00:18:48.840 --> 00:18:52.240
so you'll realize how I’m doing,

00:18:52.520 --> 00:18:55.680
and I'll see if I can persuade you
of something.

00:18:56.920 --> 00:18:59.960
We've established a relationship
that is very...

00:19:00.360 --> 00:19:01.680
...let's say...

00:19:03.040 --> 00:19:05.560
very internet-based, right?

00:19:05.840 --> 00:19:09.200
We haven't discussed who you are
and what you do.

00:19:09.320 --> 00:19:13.200
When I see a patient I first ask
about his background.

00:19:13.760 --> 00:19:16.280
But we have cut
straight to the chase here.

00:19:16.560 --> 00:19:20.080
It'd be a good thing
to ask you questions

00:19:20.200 --> 00:19:23.840
so as to better understand
what you're telling me,

00:19:24.000 --> 00:19:26.040
and see the reasons behind it.

00:19:26.600 --> 00:19:30.600
And to see the obstacles
and resources you have,

00:19:30.840 --> 00:19:32.880
so as to be able to work on this better.

00:19:33.200 --> 00:19:34.960
Because I see you...

00:19:36.080 --> 00:19:39.160
healthily ensconced in your resentment.

00:19:41.720 --> 00:19:45.520
Exactly that,
healthily ensconced in...

00:19:45.760 --> 00:19:47.840
what you just said.

00:19:48.040 --> 00:19:51.880
I am the healthiest
terminally ill patient in the world.

00:19:52.000 --> 00:19:55.080
6 MONTHS EARLIER

00:19:55.400 --> 00:19:58.560
Fernando Sureda, former officer of the
Uruguayan Football Association,

00:19:58.720 --> 00:20:02.360
suffers from a terminal illness
and asks to be euthanized.

00:20:02.720 --> 00:20:07.120
I know how ALS ends,
and knowing the end,

00:20:07.920 --> 00:20:09.960
I get ahead and
I ask to be euthanized.

00:20:10.200 --> 00:20:15.440
I don't want to be plugged to a machine
for breathing and eating.

00:20:16.280 --> 00:20:19.560
And most of all,
I don't want to see my family suffering.

00:20:19.880 --> 00:20:25.600
First, to bring the issue of euthanasia
to the forefront in society.

00:20:26.280 --> 00:20:28.600
Secondly, as a major objective,

00:20:28.760 --> 00:20:31.760
to get a law passed
decriminalizing euthanasia.

00:20:32.480 --> 00:20:36.000
It may take more time,
it may take more discussions,

00:20:36.120 --> 00:20:37.680
more debate.

00:20:38.040 --> 00:20:40.440
But I don’t care.
What’s important is to start.

00:20:41.080 --> 00:20:42.600
Death doesn't exist.

00:20:43.320 --> 00:20:44.720
Nothing is death.

00:20:45.160 --> 00:20:48.000
Who has created this?
Our frightened mind.

00:20:48.320 --> 00:20:50.360
Those who live in fear.

00:20:50.480 --> 00:20:53.640
They construct it as a lady
dressed in black, with a dagger.

00:20:53.760 --> 00:20:55.120
That's a mental construct.

00:20:55.280 --> 00:20:57.240
A scarecrow dressed with our fears,

00:20:57.400 --> 00:21:00.440
but when you look into its eyes
there's nothing.

00:21:00.600 --> 00:21:01.840
Death doesn't exist.

00:21:02.000 --> 00:21:04.680
There's the process of being born
and the process of dying,

00:21:04.840 --> 00:21:07.400
both exquisitely
exquisitely well organized.

00:21:07.920 --> 00:21:09.360
I'll start recording now.

00:21:09.640 --> 00:21:12.320
So, what I was saying is

00:21:12.760 --> 00:21:15.800
that everything you do during this time

00:21:15.960 --> 00:21:18.960
depends on your decision
of how to use that time.

00:21:19.200 --> 00:21:21.880
True, you can't do a lot from a bed,

00:21:22.080 --> 00:21:25.760
but you can think, talk, record a video,

00:21:25.880 --> 00:21:30.360
write things,
give instructions, give interviews.

00:21:30.720 --> 00:21:34.320
There are many things you can do
to fill in this time.

00:21:34.440 --> 00:21:37.920
You have to decide on that,
not other people.

00:21:38.040 --> 00:21:43.000
Anyway, you’ve decided
to go to the media, to television,

00:21:43.120 --> 00:21:47.320
and make certain statements,
look for a way out for you...

00:21:47.880 --> 00:21:51.200
Benito, even if I find meaning
to this time,

00:21:51.400 --> 00:21:54.280
it’s always
going to be affected

00:21:54.400 --> 00:21:58.000
by seeing the psychological
deterioration of my family,

00:21:58.240 --> 00:21:59.880
of the people I love most.

00:22:00.000 --> 00:22:04.400
That will always be
at the core of all my activities

00:22:04.520 --> 00:22:07.880
all my projects and my objectives.

00:22:08.000 --> 00:22:11.000
And I can't help seeing this

00:22:11.240 --> 00:22:15.640
because, unfortunately,
all my cognitive neurons are working.

00:22:15.760 --> 00:22:17.960
I don't want to see the deterioration

00:22:18.120 --> 00:22:20.760
that my wife and children
are going to suffer,

00:22:20.960 --> 00:22:23.800
and my eldest grandson,
because the others are too young.

00:22:24.360 --> 00:22:28.040
I don't want to see that and I don't
want them to go through that suffering.

00:22:28.200 --> 00:22:30.080
Is that clear, Benito?

00:22:30.640 --> 00:22:34.760
Yes, it's clear that you have
a wrong view of reality.

00:22:36.000 --> 00:22:37.080
Let's see.

00:22:37.200 --> 00:22:39.920
I had a conversation
with your son Fernando.

00:22:40.040 --> 00:22:42.800
Well, not a conversation
but I know him a little bit.

00:22:42.920 --> 00:22:45.600
He's present here
and he's listening now.

00:22:45.720 --> 00:22:50.280
He sent me an audio message
about how he deals with your disease.

00:22:50.560 --> 00:22:52.960
And I can tell you that your view,

00:22:53.080 --> 00:22:56.920
what you call the psychological
deterioration of your family,

00:22:57.040 --> 00:23:00.680
is an erroneous interpretation
you make of reality.

00:23:00.960 --> 00:23:03.400
I see it in a completely different way.

00:23:03.640 --> 00:23:06.520
They're maturing,
getting closer to you,

00:23:06.680 --> 00:23:10.240
having a closer contact with you
than ever before.

00:23:10.360 --> 00:23:16.280
This is based on my impressions
and certain suggestions by your son.

00:23:16.720 --> 00:23:20.680
And I think they’re taking advantage
of this process.

00:23:20.960 --> 00:23:26.200
You were probably
a fairly autonomous person.

00:23:27.000 --> 00:23:29.400
I can’t say authoritarian
because I don’t know you,

00:23:29.560 --> 00:23:31.880
but you’re very self-sufficient,
self-confident.

00:23:32.040 --> 00:23:36.120
The fact that you're now fragile,
vulnerable, dependent,

00:23:36.600 --> 00:23:39.480
isn’t a disaster at all,

00:23:39.880 --> 00:23:43.400
but an opportunity
to get closer, to connect with you,

00:23:43.600 --> 00:23:45.800
to show tenderness and affection

00:23:45.960 --> 00:23:48.600
in a way
that they’d never felt before.

00:23:49.280 --> 00:23:52.520
It’s true that it isn’t easy
for anyone,

00:23:52.640 --> 00:23:55.600
I wouldn't be here if it were easy.

00:23:56.600 --> 00:23:59.920
What's happening is complex
and it's very hard.

00:24:00.120 --> 00:24:03.800
But there's no need
to aggravate it by saying...

00:24:05.240 --> 00:24:11.600
What you're saying
is a way of rejecting reality.

00:24:12.000 --> 00:24:16.880
And by rejecting it, what you do
is adding discomfort to it.

00:24:19.160 --> 00:24:22.680
He doesn’t realize he’s bearing a burden,

00:24:22.960 --> 00:24:28.600
his role as a boss, an authority figure,
a father, a husband...

00:24:28.920 --> 00:24:33.080
He’s got to get over it,
accept himself as a human being.

00:24:33.200 --> 00:24:35.160
That’s the lesson to learn.

00:24:35.320 --> 00:24:38.720
Let yourself be cared for,
now like a baby,

00:24:38.880 --> 00:24:40.680
which you’re becoming.

00:24:40.840 --> 00:24:44.000
They have to wipe your bottom
and feed you.

00:24:45.240 --> 00:24:47.440
You have to learn that lesson.

00:24:47.640 --> 00:24:49.200
But you’d rather not.

00:24:49.320 --> 00:24:52.520
You want to continue being a king,
a businessman,

00:24:52.640 --> 00:24:54.160
a boss, a father, an authority...

00:24:54.880 --> 00:24:56.440
It’s everyday work...

00:24:56.680 --> 00:24:57.680
What’s wrong?

00:24:57.960 --> 00:25:00.600
I’m trying to switch on the light.

00:25:00.840 --> 00:25:04.840
It’s getting dark here in Spain...
Give me a minute.

00:25:08.440 --> 00:25:09.640
All set.

00:25:11.480 --> 00:25:13.200
Four hours ahead, right?

00:25:13.720 --> 00:25:17.480
Yes, it’s already nightfall here.

00:25:19.600 --> 00:25:21.480
Do you agree with that?

00:25:22.000 --> 00:25:24.560
Yes, completely.

00:25:25.520 --> 00:25:29.000
Now I’m putting myself in your place,
the hardest part for a wife

00:25:29.760 --> 00:25:33.760
isn’t cleaning, feeding, or caring,

00:25:33.920 --> 00:25:39.560
but seeing how angry he is
with how things are going.

00:25:40.400 --> 00:25:41.480
Yes, of course.

00:25:41.600 --> 00:25:43.320
In this same situation,

00:25:43.640 --> 00:25:47.920
if he were calm, loving,

00:25:48.560 --> 00:25:51.960
eager to share stories, revisit...

00:25:52.080 --> 00:25:53.600
Think about it...

00:25:54.000 --> 00:25:56.480
I can’t imagine you’ve done this,

00:25:56.600 --> 00:25:58.040
but I would ask that...

00:25:58.200 --> 00:26:01.800
You said you’ve been married
for 46 years.

00:26:02.040 --> 00:26:03.680
-Yes.
-Okay.

00:26:03.800 --> 00:26:04.960
Well, for example,

00:26:05.080 --> 00:26:09.040
sit down together
with the family photo album.

00:26:09.240 --> 00:26:11.720
We’ve been doing that for three years,

00:26:11.880 --> 00:26:13.840
not because you told us to.

00:26:14.000 --> 00:26:17.160
Like I said,
even if you don’t agree,

00:26:17.280 --> 00:26:20.480
I’m as ready as I’ll ever be.

00:26:20.680 --> 00:26:25.000
There’s no other way. I can’t keep seeing
the psychological suffering of my family.

00:26:25.120 --> 00:26:28.080
That’s my position.
You have yours, Benito.

00:26:28.360 --> 00:26:32.360
If we must, we’ll continue arguing...

00:26:32.600 --> 00:26:34.400
I don’t want to be a pain in the ass.

00:26:34.520 --> 00:26:35.760
Let me suggest

00:26:35.920 --> 00:26:39.600
that you tell us
what you’d like us to do.

00:26:39.720 --> 00:26:42.400
I can’t...

00:26:44.400 --> 00:26:45.960
Change your destiny.

00:26:46.080 --> 00:26:48.440
I can’t change that,
I can teach--

00:26:48.560 --> 00:26:50.560
No one can change his destiny.

00:28:10.920 --> 00:28:13.600
A HAND ON THE CHEST

00:28:13.920 --> 00:28:15.920
Would you like to say something,
Fernando Junior?

00:28:17.480 --> 00:28:18.800
Benito,

00:28:19.640 --> 00:28:24.120
I think the change has come
with his diagnosis,

00:28:25.880 --> 00:28:31.560
and it’s grown steadily

00:28:32.480 --> 00:28:34.840
because of what this disease has done,

00:28:34.960 --> 00:28:37.440
but...
I crack, to be honest.

00:28:39.360 --> 00:28:44.040
I don’t think
he’s accepted it fully yet,

00:28:44.400 --> 00:28:46.040
He still has tears to cry,

00:28:46.160 --> 00:28:48.480
a need to cry deeply.

00:28:48.600 --> 00:28:49.600
Sure.

00:28:49.720 --> 00:28:51.560
I’m as ready as I’ll ever be.

00:28:53.600 --> 00:28:55.320
Thank you, Fernando.

00:28:55.440 --> 00:28:59.800
This is a process,
a process that you...

00:29:00.400 --> 00:29:04.080
Certainly, the leading role
is played by your father,

00:29:04.480 --> 00:29:08.960
but there are supporting roles
in this film, this story,

00:29:09.240 --> 00:29:12.120
everyone around him,
also living

00:29:12.320 --> 00:29:15.640
and, somehow, sharing the experience,
right?

00:29:15.960 --> 00:29:20.960
Benito, I’m too much like him
and don’t talk too much.

00:29:21.080 --> 00:29:24.120
My brother is the talker in the family.

00:29:24.720 --> 00:29:28.720
I’m too terse, thank God,
who I don’t even believe in.

00:29:30.520 --> 00:29:33.040
Talking to me is hard work.

00:29:33.240 --> 00:29:37.560
I’m 45 and have been in therapy
for five years.

00:29:38.200 --> 00:29:41.920
By now, my therapist
has 2 houses on the beach!

00:29:43.240 --> 00:29:46.520
He wants you to discuss detachment,

00:29:46.680 --> 00:29:50.840
accepting my death with...

00:29:51.560 --> 00:29:54.920
With... A calm spirit,

00:29:55.520 --> 00:29:59.720
with the natural sadness

00:29:59.840 --> 00:30:04.120
for the loss of a father, but calmly.

00:30:04.240 --> 00:30:09.000
Tell Benito whatever the hell
it is you’re thinking right now.

00:30:09.440 --> 00:30:10.480
Fernando,

00:30:10.680 --> 00:30:14.440
he has nothing left to say.
You’ve said it all for him.

00:30:14.600 --> 00:30:17.280
He has no say here.
You’re the authority.

00:30:17.400 --> 00:30:18.640
Fuck you!

00:30:18.880 --> 00:30:21.120
Holy shit, dude!

00:30:21.560 --> 00:30:24.800
Don’t you see how you command,
organize,

00:30:24.960 --> 00:30:27.800
and direct your children’s feelings?

00:30:27.920 --> 00:30:30.920
And you want them
to accept your decision.

00:30:31.440 --> 00:30:32.640
Fuck off!

00:30:32.840 --> 00:30:37.600
Don’t you see?
You’ve just shown it to me.

00:30:38.160 --> 00:30:43.160
This kid will have to buy his therapist
another beach house

00:30:43.280 --> 00:30:44.880
if this goes on any longer.

00:30:45.400 --> 00:30:48.080
At least another 15 years of therapy.

00:30:48.880 --> 00:30:52.640
I understand everything.
I can see it all now.

00:30:54.240 --> 00:30:58.320
Fernando, your eldest son won’t ever tell you this
But I’ll say it on his behalf.

00:30:58.440 --> 00:31:03.200
Dad, I love you, but your way of treating me
has fucked off half my life.

00:31:03.400 --> 00:31:07.680
I learned I had to be a rough guy
and never cry,

00:31:07.800 --> 00:31:10.640
that I had to have balls,
no matter what.

00:31:10.800 --> 00:31:14.280
I’ve gone beyond the impossible
to keep from disappointing you.

00:31:14.800 --> 00:31:19.360
Dad, please,
let me not be as perfect as you.

00:31:19.840 --> 00:31:22.800
This is so screwed up,
I don’t know how you can manage.

00:31:22.960 --> 00:31:25.320
It’s harder on him.

00:31:26.440 --> 00:31:28.200
It’s hard for me as well,

00:31:28.320 --> 00:31:32.080
but I think I’m making progress.

00:31:32.200 --> 00:31:34.360
I think I’m working on it,

00:31:34.480 --> 00:31:37.480
with my wife, kids, on my own.

00:31:37.680 --> 00:31:38.760
Sure.

00:31:39.360 --> 00:31:44.000
Don’t you think this disease
has been very difficult for him,

00:31:44.120 --> 00:31:48.240
making him feel useless and defeated,

00:31:49.120 --> 00:31:51.280
facing his fragility,

00:31:51.400 --> 00:31:53.760
but this has also allowed you

00:31:54.000 --> 00:31:56.720
to become closer than you were before?

00:31:56.840 --> 00:32:00.200
Yes, of course.
He said “I love you” one day.

00:32:00.560 --> 00:32:03.280
Shit, did you record that?

00:32:04.440 --> 00:32:10.000
When he said he was proud of me,
he wrote it and I kept the letter.

00:32:10.280 --> 00:32:12.840
He typed it up and printed it out

00:32:12.960 --> 00:32:14.840
when I turned 25.

00:32:15.640 --> 00:32:19.080
He said it again recently,
20 years later.

00:32:19.360 --> 00:32:20.720
-Benito?
-Yes.

00:32:20.840 --> 00:32:23.480
What you’re saying,
this breakthrough,

00:32:23.640 --> 00:32:25.040
that he’s accepting,

00:32:25.240 --> 00:32:27.480
is something he’s always avoided.

00:32:27.640 --> 00:32:29.360
It would have helped him a lot.

00:32:29.840 --> 00:32:31.560
Well, well, that’s enough.

00:32:31.680 --> 00:32:35.440
Don’t interrupt.
You’re a spectator in this show here.

00:32:35.560 --> 00:32:38.040
You’re not his therapist,
let me...

00:32:38.200 --> 00:32:41.040
He indulges me.
It’s harder coming from you.

00:32:41.440 --> 00:32:44.080
I’ll turn into a coward soon.

00:32:44.360 --> 00:32:45.880
Look, that’s not it.

00:32:46.160 --> 00:32:51.360
You’d turn into someone
with the balls to let go of control.

00:32:51.720 --> 00:32:54.560
That takes more courage
than you've had so far.

00:32:54.920 --> 00:32:56.640
I challenge you.

00:32:57.080 --> 00:33:00.040
You need to be braver
than you’ve been so far.

00:33:00.320 --> 00:33:04.200
I was diagnosed 2 years ago,
and have been sick for 4.

00:33:04.360 --> 00:33:08.360
I’ve never been able
to really cry my eyes out.

00:33:08.480 --> 00:33:10.640
-Never.
-It would do you good.

00:33:10.760 --> 00:33:13.320
Your intuition tells you that, right?

00:33:13.680 --> 00:33:15.480
Yes, of course it would.

00:33:15.720 --> 00:33:19.720
Even when going through the stages of grief,
in denial,

00:33:19.920 --> 00:33:21.840
I've never cried during my denial.

00:33:22.120 --> 00:33:24.480
What would happen if you cried?

00:33:25.960 --> 00:33:28.400
I think I would feel more relieved.

00:33:28.640 --> 00:33:29.640
Of course.

00:33:30.160 --> 00:33:32.920
I’ll take a flight to Uruguay
to see you,

00:33:33.160 --> 00:33:37.560
put my hand on your chest
and make you cry until...

00:33:37.800 --> 00:33:39.160
your sheets are drenched.

00:33:39.560 --> 00:33:42.320
You’ll let go,
even if I have to go there.

00:33:42.560 --> 00:33:45.240
That...
You have to be able to change

00:33:45.480 --> 00:33:48.160
your view of reality.

00:33:48.440 --> 00:33:51.760
If need be, I’ll go all the way there
to hug you

00:33:51.880 --> 00:33:53.800
and help you change.

00:33:56.000 --> 00:33:58.280
-You move me, Benito.
-Sure.

00:33:58.480 --> 00:34:03.240
You’re a great guy.
I’m glad to have met you.

00:34:03.440 --> 00:34:05.880
But this is like childbirth.

00:34:06.040 --> 00:34:09.080
It takes time
and you can’t force things.

00:34:09.240 --> 00:34:11.600
We’ll take all the time we need,

00:34:11.720 --> 00:34:13.600
but I promise you that.

00:34:13.720 --> 00:34:16.280
If need be,
and you can’t shake this up,

00:34:16.520 --> 00:34:20.760
I’ll jump on a plane there
and we’ll have a glass of wine.

00:34:23.080 --> 00:34:25.640
You’re getting to me.

00:34:25.880 --> 00:34:27.240
I mean it.

00:34:27.720 --> 00:34:29.040
We’ll drink whiskey.

00:34:29.360 --> 00:34:33.240
Whatever it takes,
even a cigarette.

00:34:33.400 --> 00:34:38.680
I haven’t smoked in years,
but it never really leaves you...

00:34:40.400 --> 00:34:43.160
What do you say?
Saturday at the same time?

00:34:44.320 --> 00:34:46.320
Thank you, Madam President.

00:34:46.440 --> 00:34:49.800
You say human dignity
is destroyed by suffering,

00:34:49.960 --> 00:34:55.400
by weakness, by dependence,
or by terminal illness,

00:34:56.040 --> 00:34:58.560
linking dignity to the quality of life.

00:34:58.680 --> 00:35:02.400
When the quality of life is lost,
life loses dignity.

00:35:03.120 --> 00:35:07.320
Do you believe that those
with a certain illness lack dignity?

00:35:07.440 --> 00:35:10.000
That's a true monstrosity.

00:35:10.280 --> 00:35:13.680
Surely, euthanasia isn’t the same
as palliative care.

00:35:13.800 --> 00:35:15.240
Of course it’s not.

00:35:15.440 --> 00:35:18.000
In the first one,
we seek to alleviate the pain,

00:35:18.200 --> 00:35:21.000
or, rather, to eliminate the pain.

00:35:21.160 --> 00:35:23.640
The other one seeks to eliminate
the patient.

00:35:23.760 --> 00:35:25.880
Of course it’s not the same.

00:35:28.720 --> 00:35:30.720
Thank you, Madam President.

00:35:31.480 --> 00:35:35.200
Your gaze and mine,
like a wordless echo repeating:

00:35:35.600 --> 00:35:37.400
deeper, deeper,

00:35:37.720 --> 00:35:41.720
beyond it all,
through the blood and the bones.

00:35:41.840 --> 00:35:45.640
But I always wake up,
and always want to die,

00:35:46.040 --> 00:35:48.840
to keep my mouth tangled in your hair.

00:35:49.680 --> 00:35:52.120
Ramón Sampedro wrote this

00:35:52.280 --> 00:35:56.400
from the bed he was confined to
for thirty years.

00:35:56.800 --> 00:36:01.280
Anyone would understand them
as the words of a lucid man,

00:36:01.400 --> 00:36:03.400
that understands what he wants.

00:36:03.880 --> 00:36:07.920
Palliative care
isn’t a solution in many cases,

00:36:08.080 --> 00:36:11.760
cannot guarantee a dignified death
in all cases.

00:36:11.960 --> 00:36:16.160
The right wing position
on euthanasia is:

00:36:16.280 --> 00:36:18.320
fuck Ramón Sampedro!

00:36:18.440 --> 00:36:23.440
Your honour, I hope this chamber
will be up to the task this time.

00:36:24.640 --> 00:36:28.400
Inés, can we stabilize the camera
to keep it from moving?

00:36:28.600 --> 00:36:32.120
Keep Fernando in the frame,
that’s what we...

00:36:32.400 --> 00:36:36.280
-Stop, stop.
-Put it on a stand or something.

00:36:36.560 --> 00:36:38.320
-Point it down.
-It moves.

00:36:38.480 --> 00:36:40.120
Do you see him now?

00:36:40.320 --> 00:36:41.520
I’m getting dizzy.

00:36:41.640 --> 00:36:44.960
We're trying to fix it.

00:36:45.240 --> 00:36:47.800
No, a bit less...
That’s better.

00:36:48.040 --> 00:36:49.800
-That’s good.
-Perfect, yes.

00:36:49.920 --> 00:36:52.240
-Don’t touch it.
-It’s fine now.

00:36:52.640 --> 00:36:55.960
When I go to Montevideo,
I’d like

00:36:56.080 --> 00:36:58.480
to have a barbecue or something...

00:36:58.640 --> 00:37:01.880
We’ll have a barbecue
and a family party.

00:37:02.120 --> 00:37:04.760
At least one or two,
as many as we need.

00:37:05.080 --> 00:37:07.120
I’m looking forward to it. Let me tell you.

00:37:07.280 --> 00:37:09.880
-In fact, I’m so so much looking forward to it...
-Yes.

00:37:10.000 --> 00:37:13.000
That I’ve neglected
my fight for euthanasia.

00:37:13.120 --> 00:37:18.760
I spent 2 hours watching a hearing
in the Spanish Parliament,

00:37:19.280 --> 00:37:23.800
discussing the euthanasia bill,
which didn’t pass.

00:37:24.160 --> 00:37:25.200
Yes.

00:37:25.520 --> 00:37:27.560
In Spain, palliative care

00:37:27.840 --> 00:37:32.080
only reaches about half
of the people that need it.

00:37:32.200 --> 00:37:33.160
Yes.

00:37:33.280 --> 00:37:36.600
It should reach 100%.
I can agree with that.

00:37:37.160 --> 00:37:38.720
But that...

00:37:39.840 --> 00:37:41.200
Let’s say...

00:37:41.640 --> 00:37:47.040
Everyone having access
to quality palliative care

00:37:47.800 --> 00:37:54.000
doesn’t preclude
patients wanting access to euthanasia,

00:37:54.200 --> 00:37:58.600
making it another tool
to be considered by the medical team,

00:37:58.720 --> 00:38:03.480
the family, the law,
the judges, and all the rest.

00:38:03.640 --> 00:38:05.400
I'd agree with that.

00:38:05.720 --> 00:38:08.760
We need a palliative care law
with a budget

00:38:08.880 --> 00:38:13.160
to ensure that everyone that needs it
receives care,

00:38:13.400 --> 00:38:16.600
making that care accessible.

00:38:16.840 --> 00:38:17.840
Exactly.

00:38:17.960 --> 00:38:21.160
Lawmakers must order
their priorities.

00:38:21.280 --> 00:38:24.680
The first priority
is developing palliative care,

00:38:24.800 --> 00:38:27.800
making it useful and affordable
to the majority.

00:38:27.960 --> 00:38:29.640
While I agree with you,

00:38:29.760 --> 00:38:32.400
some patients
might still want euthanasia,

00:38:32.600 --> 00:38:36.960
access to a more direct method.

00:38:37.120 --> 00:38:38.160
-Okay.
-Exactly.

00:38:38.280 --> 00:38:41.240
Let me tell you
two important things from my perspective

00:38:41.360 --> 00:38:43.200
and professional experience.

00:38:43.560 --> 00:38:44.640
Firstly,

00:38:44.760 --> 00:38:47.840
this needs to be properly regulated,

00:38:47.960 --> 00:38:50.120
without penalizing those who do it.

00:38:50.280 --> 00:38:53.920
This is often an act
of love and compassion,

00:38:54.040 --> 00:38:58.200
that shouldn’t be punished with jail.
The person who does it

00:38:58.360 --> 00:39:01.720
is surely guided by affection
or some tenderness

00:39:01.840 --> 00:39:03.920
for the person who's suffering.

00:39:04.040 --> 00:39:05.000
But...

00:39:05.120 --> 00:39:06.760
I’m sorry to interrupt you

00:39:06.880 --> 00:39:11.440
Our criminal code,
dates back to 1934,

00:39:12.160 --> 00:39:14.440
and includes merciful homicide,

00:39:15.360 --> 00:39:19.360
allowing the judge
to absolve defendants in such cases.

00:39:19.760 --> 00:39:22.360
You’re ahead of Spain in that sense, then.

00:39:22.480 --> 00:39:24.960
The other thing, Fernando,

00:39:25.080 --> 00:39:27.120
is that this can be regulated

00:39:27.280 --> 00:39:30.200
without making anyone
legally responsible.

00:39:30.320 --> 00:39:32.040
It shouldn’t be punished,

00:39:32.200 --> 00:39:35.000
but this has nothing to do
with medicine.

00:39:35.160 --> 00:39:37.360
Doctors need not be involved.

00:39:38.280 --> 00:39:43.160
Taking a pill,
going off your medication,

00:39:43.280 --> 00:39:48.320
is something a partner, a spouse,
a friend, or anyone can do.

00:39:48.440 --> 00:39:50.960
You don’t need a degree to do it.

00:39:51.360 --> 00:39:57.120
The feeling of the majority of those involved
needs to prevail here.

00:39:57.680 --> 00:40:00.720
Sometimes, the majority is wrong.

00:40:01.320 --> 00:40:04.320
Democracy...
I would say it differently.

00:40:04.800 --> 00:40:09.040
Decisions can be democratic,
but wisdom is not democratic.

00:40:09.400 --> 00:40:11.280
Let me explain this.

00:40:11.560 --> 00:40:13.440
For many centuries,

00:40:13.560 --> 00:40:18.760
mankind was absolutely convinced
that the Earth was flat.

00:40:19.360 --> 00:40:20.720
Right?

00:40:21.320 --> 00:40:22.360
Absolutely.

00:40:22.560 --> 00:40:26.520
The knowledge of reality then
was very limited.

00:40:26.640 --> 00:40:28.160
Now it seems laughable.

00:40:28.600 --> 00:40:31.840
But it was no joke then.
If you said it was round

00:40:32.000 --> 00:40:35.080
you could be burnt at the stake,
sent by the Catholic church,

00:40:35.200 --> 00:40:38.480
the moral authority at the time, right?

00:40:38.600 --> 00:40:39.440
Yes, sure.

00:40:39.960 --> 00:40:41.520
The Earth isn’t flat,

00:40:41.800 --> 00:40:44.160
but we believed it for centuries.

00:40:45.040 --> 00:40:50.960
What else might we discover
that we think is normal now but isn’t?

00:40:51.520 --> 00:40:54.160
Perhaps, our belief

00:40:54.320 --> 00:40:57.840
that we are separate beings,
isolated from one another,

00:40:57.960 --> 00:41:00.080
each one with our own consciousness,

00:41:00.200 --> 00:41:03.040
each one
identified with an individual body.

00:41:03.400 --> 00:41:05.800
With a higher level of consciousness,

00:41:05.920 --> 00:41:08.880
higher than most people have today,

00:41:09.000 --> 00:41:11.440
we might perceive, sense, or taste

00:41:11.720 --> 00:41:14.560
that we’re all connected.

00:41:14.920 --> 00:41:16.640
-Sure.
-You’re not isolated.

00:41:16.760 --> 00:41:18.480
You and I are connected

00:41:18.640 --> 00:41:21.600
and we live
10 or 12,000 kilometers away.

00:41:21.960 --> 00:41:25.520
I’m very connected to you,
I feel very close to you,

00:41:25.640 --> 00:41:27.160
in many ways.

00:41:27.440 --> 00:41:29.960
And we haven’t even met physically.

00:41:30.080 --> 00:41:31.120
Agreed.

00:41:31.240 --> 00:41:33.800
Lying in bed, you can expand

00:41:33.920 --> 00:41:36.800
your view of reality
and your own life,

00:41:37.000 --> 00:41:39.960
even if you can’t walk to the bathroom.

00:41:40.280 --> 00:41:41.920
-I can attest to that.
-Sure.

00:41:42.040 --> 00:41:46.360
Dignity is extremely subjective.

00:41:47.120 --> 00:41:49.120
I used to think:

00:41:49.240 --> 00:41:51.240
"I’ll lose my dignity and...

00:41:51.360 --> 00:41:54.240
I’ll want to die
when I need my ass wiped,

00:41:54.360 --> 00:41:56.120
and my wife will have to do it".

00:41:56.360 --> 00:42:00.520
That happened two months ago
and I haven’t lost my dignity.

00:42:00.640 --> 00:42:04.440
I love her more every day
and don’t want to die.

00:42:04.560 --> 00:42:10.200
Subjectively, my idea of dignity
has changed.

00:42:10.680 --> 00:42:12.440
As Groucho Marx said,

00:42:13.240 --> 00:42:16.800
"That's my dignity, if you don't like it
I have another one".

00:42:18.200 --> 00:42:22.160
What you’re saying
is very interesting, Fernando.

00:42:22.280 --> 00:42:23.880
I like our chat today.

00:42:24.000 --> 00:42:29.120
You’re saying that, intellectually,
without any physical experience,

00:42:29.280 --> 00:42:30.360
you might suppose

00:42:30.480 --> 00:42:33.800
that you’d lose your dignity
in a certain situation.

00:42:33.920 --> 00:42:37.440
But you think so
without being in that situation.

00:42:37.640 --> 00:42:40.840
But when it happens you adapt, change.

00:42:41.000 --> 00:42:43.640
And it feels like it was a lie.

00:42:43.760 --> 00:42:47.160
-As if I was telling me a tall tale.
-Exactly.

00:42:47.280 --> 00:42:49.600
So, I’m realizing that

00:42:49.920 --> 00:42:53.600
if I make a decision
based on a projection,

00:42:53.720 --> 00:42:56.400
not wanting “to see myself like this”,

00:42:56.520 --> 00:43:00.760
it makes sense.
I wouldn’t want that to happen either.

00:43:00.880 --> 00:43:04.560
But you might not want
to die if it happened.

00:43:04.680 --> 00:43:07.240
Man, probably not.
Wait and you’ll see.

00:43:07.560 --> 00:43:12.040
Dignity is ontological,
related to your being.

00:43:12.160 --> 00:43:13.320
It’s what you are.

00:43:13.440 --> 00:43:16.600
No one can take what you are
away from you.

00:43:16.840 --> 00:43:20.400
That's dignity
from the philosophical point of view.

00:43:20.800 --> 00:43:24.240
THE SHORTCUT

00:43:24.680 --> 00:43:25.960
I’ll start recording because

00:43:26.080 --> 00:43:29.080
I think today’s interview is important.

00:43:29.280 --> 00:43:34.000
Fernando has just told me
that he’s very tired,

00:43:34.120 --> 00:43:36.760
in the last stage of his process,

00:43:36.880 --> 00:43:40.320
losing strength in his hands,
can barely grab a cigarette.

00:43:41.120 --> 00:43:45.520
He’s holding a glass,
but thinks it'll get worse.

00:43:45.760 --> 00:43:48.280
He’s tired, asking for a shortcut,

00:43:48.400 --> 00:43:51.600
one that might be
existential suffering

00:43:51.720 --> 00:43:53.880
as a sign of possible sedation.

00:43:54.240 --> 00:43:57.400
So I’m telling him that, well,

00:43:57.520 --> 00:44:01.440
he’s no ordinary patient.

00:44:01.640 --> 00:44:03.640
I’m here for another reason,

00:44:03.760 --> 00:44:06.000
because I care deeply for him.

00:44:06.120 --> 00:44:08.280
I feel very connected,

00:44:08.400 --> 00:44:10.320
we’ve been together for months.

00:44:10.440 --> 00:44:11.760
-Inés, come.
-Going.

00:44:12.720 --> 00:44:15.280
Let’s lay it all on the table.

00:44:15.640 --> 00:44:18.160
We’re talking seriously here.

00:44:18.320 --> 00:44:21.040
It hurts to see you like this.

00:44:21.240 --> 00:44:23.160
I hate that this is happening.

00:44:23.560 --> 00:44:25.840
But, Fernando...
It’s our reality.

00:44:26.200 --> 00:44:29.600
You can’t ask a family member
to end this.

00:44:29.720 --> 00:44:33.720
That would ruin that person.

00:44:33.840 --> 00:44:37.760
You don’t know how hard this is.
I know what I’m talking about.

00:44:37.920 --> 00:44:40.360
This is fucking hard on that person.

00:44:41.200 --> 00:44:44.560
-But...
-You can’t ask a family member for that.

00:44:44.920 --> 00:44:47.520
A doctor won’t do it either.

00:44:47.920 --> 00:44:50.920
-No, no.
-Be realistic.

00:44:51.240 --> 00:44:53.840
Sedation doesn’t kill,
it just makes you sleep.

00:44:54.200 --> 00:44:58.480
It’s like anesthesia, it puts you to sleep,
so that you aren’t awake

00:44:58.600 --> 00:45:01.520
but your body keeps on working.

00:45:02.040 --> 00:45:03.920
No more existential suffering,

00:45:04.040 --> 00:45:07.880
but it’s the disease that kills you,
not sedation.

00:45:08.160 --> 00:45:12.040
We sedate patients in agony,
with only a few days left.

00:45:12.160 --> 00:45:14.200
You put him to sleep

00:45:14.320 --> 00:45:16.120
to make those last days peaceful.

00:45:16.280 --> 00:45:18.680
If we were to put you to sleep now

00:45:19.120 --> 00:45:22.640
you’d be out for 15 days.
That would be a really low blow.

00:45:22.760 --> 00:45:25.320
Inés wouldn’t know what to do.

00:45:25.520 --> 00:45:29.640
I understand that, Benito,
very clearly.

00:45:29.760 --> 00:45:31.440
I put myself in your shoes,

00:45:31.720 --> 00:45:35.840
trying to imagine what you’re feeling.

00:45:36.560 --> 00:45:38.320
I think you’re right.

00:45:38.920 --> 00:45:42.680
I’d like to be helped
if I were in your situation.

00:45:42.800 --> 00:45:47.000
Not being a burden.
Watching my own progressive decay.

00:45:47.120 --> 00:45:48.760
All that, right?

00:45:49.160 --> 00:45:51.520
So, honestly...

00:45:51.640 --> 00:45:55.320
I know what a doctor can do
in these situations,

00:45:55.440 --> 00:45:57.120
and what a patient needs.

00:45:57.240 --> 00:46:00.440
I feel closer to you
than to the doctors.

00:46:00.720 --> 00:46:04.320
You can control your end.

00:46:04.440 --> 00:46:08.880
You like having control.
I’d like you to keep control,

00:46:09.160 --> 00:46:11.360
although this plan is demanding.

00:46:11.480 --> 00:46:16.200
You could do something we know works out
in these situations.

00:46:16.560 --> 00:46:17.920
Can you hear me?

00:46:18.440 --> 00:46:20.360
-Perfectly all right.
-So can I.

00:46:20.760 --> 00:46:22.440
There’s no pill.

00:46:22.560 --> 00:46:25.120
Don’t ask your son for a drug.

00:46:25.240 --> 00:46:29.000
He’ll feel guilty
about sending you off.

00:46:29.160 --> 00:46:32.480
It’s easy to describe
and hard to do.

00:46:32.760 --> 00:46:35.240
It just takes balls.

00:46:36.320 --> 00:46:39.680
Tomorrow you’ll have a party,

00:46:39.800 --> 00:46:42.640
Say goodbye to your sons
and stop drinking.

00:46:42.760 --> 00:46:45.520
Stop eating and drinking.

00:46:47.800 --> 00:46:49.840
Wait, don’t be scared.

00:46:50.040 --> 00:46:53.040
Yes, you’ll feel thirsty.
It’s true,

00:46:53.480 --> 00:46:57.640
especially if you’ve had
a couple of whiskies before.

00:46:57.920 --> 00:46:59.880
But local treatments,

00:47:00.000 --> 00:47:03.680
a series of creams,
vaseline,

00:47:03.840 --> 00:47:05.960
will keep your mouth moist.

00:47:06.080 --> 00:47:09.520
You won’t have...

00:47:09.800 --> 00:47:12.600
You won’t feel
an unpleasant dryness.

00:47:13.200 --> 00:47:15.240
What will happen if you do this?

00:47:15.760 --> 00:47:18.280
It'll take three to four days.

00:47:18.400 --> 00:47:21.800
It might be hard,
you might feel uncomfortable.

00:47:21.920 --> 00:47:26.200
We can help you with painkillers,
tranquilizers, sedatives.

00:47:26.480 --> 00:47:29.800
As of the second day,
you’ll stop urinating

00:47:30.080 --> 00:47:33.080
so the medication will stay
in your body.

00:47:33.400 --> 00:47:36.520
You won’t eliminate it,
increasing its effects.

00:47:36.840 --> 00:47:40.120
A few sedatives
will make you sleep for hours.

00:47:40.560 --> 00:47:45.360
If you can stay strong
and avoid drinking

00:47:46.040 --> 00:47:49.400
you’ll probably fall asleep
after six-seven days.

00:47:50.360 --> 00:47:53.280
The first three or four days
will be very hard.

00:47:53.640 --> 00:47:56.760
You’ll be very sleepy
after the fourth-fifth day.

00:47:56.920 --> 00:47:58.400
Around the sixth day,

00:47:58.560 --> 00:48:01.440
you’ll lose touch
with your surroundings,

00:48:01.560 --> 00:48:02.920
you’ll feel very lost.

00:48:03.200 --> 00:48:07.680
At a certain point,
the body will collapse and you’ll go.

00:48:07.840 --> 00:48:09.880
But, Benito...

00:48:10.440 --> 00:48:13.840
I love that solution.
There’s just one problem.

00:48:14.360 --> 00:48:17.080
I’d condemn my family

00:48:17.200 --> 00:48:21.120
to watch that agony
for 7 to 12 days.

00:48:21.280 --> 00:48:24.480
After the fifth day,
I wouldn’t be around,

00:48:24.600 --> 00:48:27.760
but they would, watching me die.
That’s no good.

00:48:27.880 --> 00:48:29.680
Listen, they’ll see you...

00:48:30.040 --> 00:48:33.240
Fernando, that’s a crap excuse.

00:48:33.960 --> 00:48:37.720
We’ll all suffer,
no matter how you do it.

00:48:40.760 --> 00:48:43.960
I don’t know, Benito.
Thanks for your... Truth...

00:48:44.080 --> 00:48:47.760
I don’t know what else we could do,
Fernando.

00:48:48.160 --> 00:48:50.560
-Nothing.
-I’m sorry I can’t be there.

00:48:50.840 --> 00:48:53.280
Right now, I’d pay any price

00:48:53.400 --> 00:48:57.400
to be in Uruguay with you now.

00:48:57.760 --> 00:49:01.080
He’s so loving.
How sweet!

00:49:01.640 --> 00:49:03.920
That’s touching, Benito.

00:49:04.560 --> 00:49:08.280
This makes me feel so powerless.

00:49:09.440 --> 00:49:11.960
-We all do.
-So powerless.

00:49:15.040 --> 00:49:19.520
-That makes two of us, Benito.
-Two of us.

00:49:24.640 --> 00:49:26.640
Subject matter: Hugs to ALS

00:49:26.800 --> 00:49:33.160
I’ve decided I can’t die
before Benito arrives.

00:49:41.160 --> 00:49:45.680
Any recent change?
Are you stabilized? How do you see it?

00:49:45.760 --> 00:49:48.480
I think it’s stabilized.

00:49:48.880 --> 00:49:52.200
That is, the last heavy blow

00:49:52.360 --> 00:49:56.760
was starting to lose
the ability to cough,

00:49:57.840 --> 00:50:00.200
which I obviously associated

00:50:00.360 --> 00:50:03.840
with the diminishing strength
of my abdominal muscles.

00:50:04.240 --> 00:50:08.240
But it stopped there.

00:50:08.360 --> 00:50:13.480
I still have
good oxygen saturation levels,

00:50:14.640 --> 00:50:16.640
talking doesn’t tire me...

00:50:17.720 --> 00:50:19.360
It seems it’s stopped there.

00:50:19.520 --> 00:50:24.320
I have to wait for the next blow.
It might be in my arms...

00:50:24.440 --> 00:50:28.040
Not in my legs,
as they're already gone.

00:50:28.160 --> 00:50:29.840
It could be my arms.

00:50:30.600 --> 00:50:33.040
I have to thank this son of a bitch

00:50:33.160 --> 00:50:35.920
for letting me speak, eat,

00:50:36.040 --> 00:50:39.480
for letting me taste,
to have my whiskies,

00:50:39.600 --> 00:50:41.000
for letting me smoke.

00:50:41.120 --> 00:50:44.720
-I have to thank this bitch.
-Yes, yes.

00:50:45.600 --> 00:50:49.080
If I lost the ability to speak, Benito,

00:50:49.680 --> 00:50:51.480
I’d be doing much worse.

00:50:51.600 --> 00:50:54.000
-I can express myself.
-Of course.

00:50:54.320 --> 00:50:55.560
It’s important.

00:50:55.680 --> 00:51:01.680
Sometimes, I watch videos
of sick people on YouTube,

00:51:02.040 --> 00:51:06.880
people that can’t speak,
35 or 40-year-olds,

00:51:07.240 --> 00:51:12.360
and I feel such...
Not pity, but tremendous compassion.

00:51:12.520 --> 00:51:14.560
I put myself in their place.

00:51:14.840 --> 00:51:18.320
I have to thank this bitch
for letting me speak,

00:51:18.520 --> 00:51:21.560
letting me be here with you,
with my wife,

00:51:21.720 --> 00:51:23.880
with palliatives,
with my children, grandchildren.

00:51:24.040 --> 00:51:27.480
To speak, reflect, explore...

00:51:28.320 --> 00:51:31.160
Fucking hell! Isn't it a great bitch?

00:51:31.640 --> 00:51:32.840
Benito, I’m here.

00:51:32.960 --> 00:51:36.520
I’d like you to know that you beat him,

00:51:36.720 --> 00:51:39.680
He doesn’t ask to die
all day long now.

00:51:39.880 --> 00:51:41.200
No, wait.

00:51:41.280 --> 00:51:44.120
We haven’t talked yet.
We have to...

00:51:44.320 --> 00:51:48.560
He has to push the euthanasia bill
to be passed by Uruguayan Parliament,

00:51:48.680 --> 00:51:50.560
and a palliative care bill too.

00:51:51.280 --> 00:51:53.600
Yes.
We've already got the second one.

00:51:53.880 --> 00:51:55.480
Well, we have work to do.

00:51:55.600 --> 00:51:58.560
We have to work together.

00:51:58.760 --> 00:52:02.680
When I go there in May,
we have to sign some papers,

00:52:02.960 --> 00:52:06.160
you and I, along with Inés
and your sons.

00:52:06.360 --> 00:52:08.880
We have to chat,
sit down and eat.

00:52:09.000 --> 00:52:11.560
We’ll be filmed by television cameras.

00:52:11.680 --> 00:52:14.880
We’ll be using all of this
for a documentary,

00:52:15.000 --> 00:52:19.520
whether for Netflix, the Goya awards,
the Oscars, or whatever.

00:52:19.720 --> 00:52:24.640
You and I will ride this one out
together.

00:52:24.760 --> 00:52:28.440
We’ll be connected
for the rest of history.

00:52:29.080 --> 00:52:32.080
Right.
Like a Netflix production:

00:52:32.200 --> 00:52:34.200
season one,
season two, season three.

00:52:34.360 --> 00:52:36.480
We make season one and say:

00:52:36.600 --> 00:52:40.280
"Season 2, he died.
Sorry, he won’t be coming”.

00:52:40.520 --> 00:52:41.800
What do you think?

00:52:41.920 --> 00:52:44.280
We can make twelve 50-minute episodes.

00:52:44.520 --> 00:52:45.640
One more thing:

00:52:45.800 --> 00:52:49.040
I want to bring you a present
from Mallorca.

00:52:50.840 --> 00:52:53.160
You’ll have to tell me what you want.

00:52:53.280 --> 00:52:56.560
Otherwise, it’ll be a surprise.

00:52:57.320 --> 00:53:01.320
But I’d rather you told me
if there’s something you want.

00:53:01.720 --> 00:53:04.040
Bring me a dozen ensaimada pastries.

00:53:04.200 --> 00:53:05.880
-A dozen?
-Yes.

00:53:09.760 --> 00:53:15.200
-Aren’t they typical in Mallorca?
-Yes, of course. Consider it done.

00:53:16.680 --> 00:53:17.720
Finished, done!

00:53:17.840 --> 00:53:20.000
I’ll have to see.
With COVID,

00:53:20.120 --> 00:53:23.320
they might control food on flights.

00:53:24.760 --> 00:53:27.920
I’ll see if I can get past customs.

00:53:28.040 --> 00:53:29.680
-Yes.
-Manufactured terror.

00:53:29.960 --> 00:53:32.280
The terror industry is in full swing.

00:53:32.520 --> 00:53:34.200
It’s been hard.

00:53:34.400 --> 00:53:36.040
What a mess!

00:53:37.240 --> 00:53:39.520
-Yes.
-Just a minute, Fernando.

00:53:48.400 --> 00:53:51.600
Fernando, I have an interruption here,
my wife...

00:53:52.160 --> 00:53:54.040
-Some water?
-No, whiskey.

00:53:54.360 --> 00:53:56.360
-What do you want?
-Whiskey.

00:53:56.760 --> 00:53:58.840
-I’m asking my carer for whiskey.
-Okay.

00:53:59.160 --> 00:54:00.360
One thing...

00:54:00.600 --> 00:54:02.920
Can we try...

00:54:03.040 --> 00:54:06.560
I’ve just been interrupted.

00:54:06.840 --> 00:54:09.960
My wife is asking
if I can accompany her to...

00:54:10.200 --> 00:54:14.240
We have to cut today’s session short,
but we can meet again...

00:54:14.360 --> 00:54:16.040
Some other time...

00:54:16.160 --> 00:54:18.840
I don’t have to travel this week
until Thursday.

00:54:21.200 --> 00:54:24.520
I’m worried,
she’s getting a bit...

00:54:25.480 --> 00:54:26.600
dramatic.

00:54:26.760 --> 00:54:29.360
You always have
the last word with her, right?

00:54:30.160 --> 00:54:32.800
Yes.
Whatever you say, darling.

00:54:32.920 --> 00:54:34.040
Yes, darling.

00:54:34.440 --> 00:54:37.400
Yes, darling, whatever you say.

00:54:37.760 --> 00:54:40.520
She wants to see our country home.

00:54:40.680 --> 00:54:43.240
It’s been windy in our hometown.

00:54:43.360 --> 00:54:45.040
Something might be broken.

00:54:45.200 --> 00:54:47.240
She’s saying she’ll go alone otherwise.

00:54:47.520 --> 00:54:48.480
She’s waiting.

00:54:48.600 --> 00:54:49.600
No, Benito.

00:54:49.720 --> 00:54:53.040
Inés, my wife will kick me out
if I don’t go now.

00:54:53.360 --> 00:54:55.040
-I have to go.
-Fair enough.

00:54:55.160 --> 00:54:56.920
Sorry, I’ll leave you.

00:54:57.040 --> 00:54:59.040
-Go with her...
-I’m sorry.

00:54:59.680 --> 00:55:01.120
Sending kisses, Benito.

00:55:01.240 --> 00:55:02.600
See you on Wednesday.

00:55:02.800 --> 00:55:04.600
-Okay.
-Thanks, bye.

00:55:09.240 --> 00:55:10.920
I don’t dare smoke alone.

00:55:11.480 --> 00:55:14.080
I might drop the cigarette in bed

00:55:14.480 --> 00:55:17.760
and Inés might not arrive in time...

00:55:17.960 --> 00:55:19.040
It’s dangerous.

00:55:19.200 --> 00:55:24.440
If I can’t smoke alone, well,
I ask Inés to give me a cigarette.

00:55:25.280 --> 00:55:28.280
If I can’t drink whiskey on my own,
as you see here...

00:55:28.400 --> 00:55:30.760
I can still manage with my two hands.

00:55:33.120 --> 00:55:36.720
I’m excited,
keeping up my hopes

00:55:37.280 --> 00:55:38.880
that in a few months...

00:55:39.000 --> 00:55:41.560
In Spain, they’re starting to discuss

00:55:41.920 --> 00:55:45.080
opening up flights for Germans,

00:55:45.240 --> 00:55:48.680
they say as of June 15th,

00:55:49.080 --> 00:55:52.680
from Germany,
where there are also few cases.

00:55:53.120 --> 00:55:55.920
That means opening airports...

00:55:56.040 --> 00:55:59.160
They’re talking about
opening up by July.

00:55:59.360 --> 00:56:01.160
-For tourism.
-Exactly.

00:56:01.320 --> 00:56:05.200
So, it’s not crazy to think

00:56:05.320 --> 00:56:10.080
that by late August or September,
there’ll be international flights.

00:56:10.960 --> 00:56:12.760
-Hello, Enric.
-How are you?

00:56:13.120 --> 00:56:17.360
Hi! Is it true that he’s a bit sadder today.
What do you think?

00:56:20.120 --> 00:56:23.440
Not sadder,
he’s sick and tired of it,

00:56:23.880 --> 00:56:25.360
of being here in bed, poor thing.

00:56:25.720 --> 00:56:27.880
He’s hearing a lot of garbage.

00:56:28.000 --> 00:56:31.680
Tell him to watch
some Groucho Marx films.

00:56:31.800 --> 00:56:32.840
Sure.

00:56:32.960 --> 00:56:35.400
Enough of Bolsonaro,
that Trump.

00:56:35.560 --> 00:56:37.800
It’ll make him...

00:56:38.760 --> 00:56:41.560
Shit, it’ll make his illness worse.

00:56:42.960 --> 00:56:45.320
My God!

00:56:46.040 --> 00:56:49.680
It’s mostly that. He’s sick of it.
Right, Fernando?

00:56:49.800 --> 00:56:52.240
-Yes.
-I’m fed up, fed up, fed up.

00:56:52.440 --> 00:56:53.560
Well...

00:56:53.720 --> 00:56:56.640
Yes, it’s a sensitive time for you.

00:56:57.080 --> 00:56:58.720
I have a friend, Benito,

00:56:59.320 --> 00:57:03.760
who went to the doctor last week...

00:57:03.920 --> 00:57:05.040
Ok.

00:57:05.160 --> 00:57:09.400
For some medical exams.

00:57:10.840 --> 00:57:14.440
Looking over the results,
the doctor says:

00:57:14.600 --> 00:57:18.280
You can’t eat any more red meat,

00:57:18.640 --> 00:57:22.720
nor any sweetbread or chitterling,
you can’t have any more ham,

00:57:23.400 --> 00:57:26.560
no more pork,

00:57:26.720 --> 00:57:30.040
you can’t have any more sausages.

00:57:31.000 --> 00:57:35.080
He asks the doctor why not,
“What do I have?”

00:57:35.320 --> 00:57:37.480
“A shitty pension”, the doctor replied.

00:57:39.960 --> 00:57:43.560
There’s more. Then the doctor tells him

00:57:43.680 --> 00:57:47.040
he can’t smoke or drink either.

00:57:47.160 --> 00:57:48.960
“Will I live longer?” he asks.

00:57:49.080 --> 00:57:51.640
“No, but it’ll seem longer.”

00:57:54.000 --> 00:57:56.600
That’s a good one.

00:58:00.800 --> 00:58:05.920
A doctor tells his patient
he has good news and bad news.

00:58:06.720 --> 00:58:09.680
-Where should I start?
-With the good news.

00:58:10.440 --> 00:58:12.560
You have three days to live.

00:58:13.240 --> 00:58:15.320
Fuck!
What’s the bad news?

00:58:15.520 --> 00:58:17.960
Shit! I should have told you yesterday.

00:58:21.560 --> 00:58:24.240
You've made me laugh, Benito.

00:58:46.920 --> 00:58:51.920
I saw it in a close friend’s eyes,

00:58:52.160 --> 00:58:55.280
when he came to visit me two weeks ago.

00:58:55.400 --> 00:59:00.040
He was here for 10 minutes
and left with a silly excuse.

00:59:00.840 --> 00:59:04.080
He couldn’t bare
to see me like this.

00:59:05.320 --> 00:59:10.160
Yes, that’s what we call social death.

00:59:10.480 --> 00:59:13.960
People aren’t prepared.

00:59:14.120 --> 00:59:18.560
They’re afraid,
they don’t know what to do with this.

00:59:19.560 --> 00:59:21.840
People can’t manage their emotions.

00:59:22.000 --> 00:59:25.240
They can’t organize, separate things
and say:

00:59:25.480 --> 00:59:29.160
It’s true,
but he needs me and I want to see him.

00:59:29.280 --> 00:59:30.960
My love is bigger than my fear.

00:59:31.080 --> 00:59:32.800
People can’t do that.

00:59:32.920 --> 00:59:36.840
Sure.
It doesn’t hurt me, it’s something I sense.

00:59:37.600 --> 00:59:39.600
I still love them all.

00:59:40.280 --> 00:59:43.600
I’ve thought about it
from their perspective,

00:59:44.280 --> 00:59:46.360
seeing a friend with ALS,

00:59:46.520 --> 00:59:49.400
and wondered how I would react.

00:59:49.920 --> 00:59:52.680
I haven’t found an answer, Benito.

01:00:07.920 --> 01:00:12.480
Now, for instance,
I'm taking a painkiller

01:00:12.600 --> 01:00:16.400
because I have a toothache.

01:00:17.240 --> 01:00:24.680
So, kind of joking,
I ask Mrs. ALS:

01:00:25.000 --> 01:00:30.200
Was it really necessary to give
me this toothache, you bitch?

01:00:30.560 --> 01:00:31.640
Really?

01:00:31.960 --> 01:00:33.920
He’s venting, Benito.

01:00:34.080 --> 01:00:36.320
It’s a matter of imagination.

01:00:36.480 --> 01:00:41.360
Imagine setting up a bar,
at this height,

01:00:41.520 --> 01:00:45.640
with a toothbrush
to scratch your eyebrows

01:00:45.840 --> 01:00:47.160
every now and again.

01:00:47.480 --> 01:00:50.880
You do that
and you can scratch your itch.

01:00:51.000 --> 01:00:52.760
You’d be all set! Fuck!

01:00:53.880 --> 01:00:57.800
You know,
the system you’ve just described

01:00:58.200 --> 01:01:01.520
is what I do to brush my teeth.

01:01:01.640 --> 01:01:03.920
Since I can’t move my arms,

01:01:04.080 --> 01:01:06.640
I fix the brush and move my head.

01:01:07.520 --> 01:01:10.320
But that works
as long as I can move my head.

01:01:10.480 --> 01:01:15.000
It’s the only thing I...
I could head a soccer ball at the beach.

01:01:15.120 --> 01:01:16.520
I can move it well.

01:01:16.920 --> 01:01:20.400
But, at any moment, this bitch
might take that away.

01:01:20.520 --> 01:01:23.200
Try scratching yourself now, fag!

01:01:24.040 --> 01:01:28.200
Besides, this lady...
What’s wrong, darling?

01:01:30.480 --> 01:01:31.800
-Can we come in?
-No.

01:01:32.000 --> 01:01:33.600
Okay, come in.

01:01:35.520 --> 01:01:36.840
Come in.

01:01:37.440 --> 01:01:40.320
I’ll tell you later,
I’m being interrupted.

01:01:40.480 --> 01:01:43.520
They’ve just come in,
who knows why.

01:01:43.640 --> 01:01:45.080
I’ll tell you later.

01:01:45.200 --> 01:01:47.440
It’s a personal matter.

01:01:48.920 --> 01:01:52.120
I’m...
Have you noticed the change in scenery?

01:01:52.640 --> 01:01:53.680
Yes.

01:01:53.800 --> 01:01:56.240
I moved to a different home.

01:01:57.160 --> 01:01:59.920
My wife and I moved here,

01:02:00.080 --> 01:02:02.840
to my in-laws’ house in the countryside,

01:02:03.520 --> 01:02:08.520
25 kilometers away from home,
in a small town.

01:02:08.800 --> 01:02:11.520
It’s fine, but they’re doing some work.

01:02:11.800 --> 01:02:14.480
They have to...
I’ll tell you later.

01:02:14.760 --> 01:02:19.600
Benito, wipe that angry look off your face.
Remember you have the last word.

01:02:19.840 --> 01:02:22.400
That menacing face won’t scare me.

01:02:22.520 --> 01:02:25.680
I’m pissed off.
They’re sending in the workmen through...

01:02:25.800 --> 01:02:28.120
Calm down, man.
Don’t get pissed off.

01:02:28.360 --> 01:02:31.000
You’re healthy, young,

01:02:31.120 --> 01:02:33.880
You’ve got a family, grandchildren,
children.

01:02:34.160 --> 01:02:37.640
Don’t get pissed off, young moron.
You dumb Spaniard.

01:02:37.760 --> 01:02:38.800
You bastard.

01:02:38.920 --> 01:02:42.560
Calm down, laugh.
Fuck, I like seeing you laugh.

01:02:42.680 --> 01:02:45.920
Shit, said the queen,
and combed her ass while it’s still green

01:02:46.040 --> 01:02:48.840
Shhh... His wife might be listening!

01:02:50.400 --> 01:02:54.440
The queen of Uruguay?
But you’ve never had a monarchy, fuck!

01:02:55.000 --> 01:02:57.480
Then I must be talking about yours,

01:02:57.720 --> 01:02:59.160
Queen Sofia.

01:03:01.360 --> 01:03:02.400
Asshole.

01:03:04.920 --> 01:03:06.040
Give me a second.

01:03:08.400 --> 01:03:12.080
He’s pissed off by the interruptions,
at his mother-in-law’s house.

01:03:12.280 --> 01:03:14.120
-He moved?
-Yes, he moved.

01:03:14.240 --> 01:03:15.520
To his mother-in-law’s?

01:03:20.040 --> 01:03:22.480
Benito, my friend, good evening.

01:03:23.280 --> 01:03:28.400
It’s past midnight
in Mallorca now.

01:03:28.880 --> 01:03:32.200
This morning, in Uruguay,

01:03:32.560 --> 01:03:35.880
I had myself bathed, clothed,

01:03:36.200 --> 01:03:39.640
shaved, and combed

01:03:40.680 --> 01:03:45.120
in preparation
for our Wednesday meeting.

01:03:45.680 --> 01:03:50.000
But I’m here,
as we say in Uruguay,

01:03:50.440 --> 01:03:52.680
I’ve been stood up!

01:03:53.240 --> 01:03:56.080
I love you.
I hope you haven’t forgotten me,

01:03:56.240 --> 01:04:00.320
I hope this has been a momentary lapse.

01:04:00.960 --> 01:04:02.280
Let me say it again:

01:04:02.520 --> 01:04:04.720
I love you, you old Spaniard.

01:04:06.280 --> 01:04:08.000
Hi, Fernando, good morning.

01:04:08.120 --> 01:04:10.120
Thanks for your interest...

01:04:10.840 --> 01:04:15.640
So, today, I confess that...

01:04:15.800 --> 01:04:19.920
Sometimes I get a vertebral impingement
in my cervical spine

01:04:20.080 --> 01:04:23.040
which makes
my shoulders and back stiff.

01:04:23.280 --> 01:04:26.880
It causes me an intense pain
and I can't sleep in bed.

01:04:27.000 --> 01:04:29.160
I lay down but kept turning,

01:04:29.400 --> 01:04:32.160
so eventually I got a up
took a pain killer,

01:04:32.440 --> 01:04:35.720
and I went out to the terrace,
and fell asleep in the sun.

01:04:36.080 --> 01:04:39.880
When I woke up it was after 5,
I was angry with myself.

01:04:40.120 --> 01:04:43.520
I was still in pain,
and also sunburned.

01:04:43.720 --> 01:04:45.720
Sunburned like... anyway...

01:04:45.960 --> 01:04:50.280
And so you see,
I went too far...

01:04:50.600 --> 01:04:52.840
too far.

01:04:53.000 --> 01:04:54.680
So, I want to apologize.

01:04:55.360 --> 01:04:57.560
I feel better now,

01:04:57.680 --> 01:04:59.440
I've taken some painkillers

01:04:59.560 --> 01:05:04.920
and the pain in my spine is gone...

01:05:05.200 --> 01:05:07.960
We'll talk soon, okay?
Thanks Fernando. Bye.

01:05:10.000 --> 01:05:11.320
I’ll start recording.

01:05:13.560 --> 01:05:15.800
How clever!

01:05:16.480 --> 01:05:18.440
ALSo adds...

01:05:19.640 --> 01:05:21.640
ALSo keeps it clever.

01:05:21.880 --> 01:05:22.880
ALS.

01:05:23.400 --> 01:05:24.680
For fuck’s sake!

01:05:24.800 --> 01:05:28.240
On global ALS Awareness Day

01:05:28.400 --> 01:05:32.200
here you have
a 70-year-old patient,

01:05:32.640 --> 01:05:36.920
impeccably dressed,
impeccably healthy,

01:05:37.480 --> 01:05:39.960
witnessing his own slow death,

01:05:40.280 --> 01:05:44.360
smoking a cigarette,
and drinking whiskey.

01:05:46.520 --> 01:05:49.280
Cheers, ALS!
Go fuck yourself!

01:05:49.480 --> 01:05:53.480
That’s another good clip for the launch.

01:05:53.760 --> 01:05:56.400
A fantastic start for the video.

01:05:56.520 --> 01:05:57.920
I’ll stop recording here...

01:05:58.400 --> 01:06:01.560
THERE IS A DOOR THERE

01:06:02.160 --> 01:06:04.480
What do you use 100% of the day?

01:06:04.800 --> 01:06:07.160
You use your legs when you walk.

01:06:07.760 --> 01:06:10.880
But your arms and hands...

01:06:11.640 --> 01:06:13.560
Besides, it’s so automatic.

01:06:13.720 --> 01:06:19.280
Why the fuck can I scratch my nose

01:06:19.400 --> 01:06:22.040
but my hand won’t reach my eyebrow?

01:06:23.760 --> 01:06:28.080
I still haven’t found answers,
don’t you see?

01:06:28.200 --> 01:06:29.320
Of course.

01:06:29.840 --> 01:06:34.560
But you can swallow, gulp, breathe?
You’re still alright.

01:06:34.680 --> 01:06:36.120
Yes, yes.

01:06:36.680 --> 01:06:39.280
Swallow, gulp, breath, all of that.

01:06:39.560 --> 01:06:41.560
We had that issue...

01:06:42.480 --> 01:06:44.000
-How did...?
-Benito

01:06:44.120 --> 01:06:45.240
Have you seen Laura?

01:06:45.360 --> 01:06:47.520
How are you, Inés? Tell me.

01:06:47.920 --> 01:06:51.280
Do you realize that he’ll start smoking again
if I bring him a cigarette?

01:06:51.400 --> 01:06:52.800
Otherwise, he won’t smoke again.

01:06:52.960 --> 01:06:55.640
The President of the government
has spoken.

01:06:56.120 --> 01:06:57.680
Exactly.

01:06:59.200 --> 01:07:00.760
The President.

01:07:00.960 --> 01:07:03.480
You’re the head of the opposition,

01:07:03.600 --> 01:07:06.200
that’s what you’ve become.

01:07:06.720 --> 01:07:09.600
Okay, I'm the head of the opposition.

01:07:09.800 --> 01:07:12.280
There’s no way around it, Benito.

01:07:13.400 --> 01:07:17.600
Enric,
if only smoking killed him quickly...

01:07:17.720 --> 01:07:21.520
But it doesn’t.
He smokes and gets that horrible cough.

01:07:21.640 --> 01:07:24.480
It’s like torture.

01:07:24.600 --> 01:07:27.240
Sure, he’s suffering unnecessarily.

01:07:27.520 --> 01:07:29.400
The question is

01:07:29.840 --> 01:07:32.880
if saying “I love you” is necessary.

01:07:33.280 --> 01:07:37.680
No, I think everyone already knows.
The whole world can see it.

01:07:39.240 --> 01:07:43.040
Before going there in September,
I’ll upload some of our talks

01:07:43.320 --> 01:07:46.320
onto a video,
even if it’s some amateur work,

01:07:46.640 --> 01:07:49.120
so you, I, and the family can see them.

01:07:49.240 --> 01:07:50.360
-At least.
-Good.

01:07:50.640 --> 01:07:52.480
We’ve discussed
many important issues here.

01:07:52.600 --> 01:07:56.480
I think it’ll be recorded
for posterity.

01:07:57.680 --> 01:08:00.320
-That’s great, great.
-Okay.

01:08:00.680 --> 01:08:04.880
I’m glad you look better,
you seem a bit better today.

01:08:05.640 --> 01:08:08.920
Man, it’s that I had sex this morning.

01:08:09.200 --> 01:08:11.320
Today was the day.

01:08:11.840 --> 01:08:14.640
Sex with the nurse.

01:08:16.560 --> 01:08:18.520
-Fernando, a big hug.
-A hug.

01:08:18.720 --> 01:08:21.360
-A big kiss.
-Goodbye, Inés.

01:08:25.440 --> 01:08:27.200
Benito, my friend.

01:08:27.520 --> 01:08:31.040
It must be 2 am in Spain now.

01:08:31.920 --> 01:08:33.680
I managed to meet,

01:08:33.840 --> 01:08:37.680
despite my agnosticism,

01:08:38.120 --> 01:08:42.520
I managed to meet angels
that I wouldn’t have met otherwise.

01:08:42.680 --> 01:08:45.600
I mean all types of angels,

01:08:45.880 --> 01:08:51.920
from my wife
to the hospital doorman.

01:08:52.560 --> 01:08:55.880
Angels, people who communicate

01:08:56.000 --> 01:08:59.120
in such a special way

01:08:59.320 --> 01:09:02.960
that I would miss them
if they didn’t exist.

01:09:05.720 --> 01:09:10.480
Now I’m in the
I-don’t-give-a-shit mood.

01:09:12.360 --> 01:09:15.520
Benito is laughing.
It’s true.

01:09:16.480 --> 01:09:18.120
-Yes.
-Exactly.

01:09:18.280 --> 01:09:20.720
That’s my current mood.

01:09:21.320 --> 01:09:23.000
That’s just chemistry,

01:09:23.400 --> 01:09:25.960
with a bit of whiskey mixed in,

01:09:26.080 --> 01:09:29.760
to really get things going.

01:09:30.640 --> 01:09:32.000
-Sure.
-The whiskey...

01:09:32.680 --> 01:09:36.160
Fernando,
do you ever watch movies?

01:09:36.280 --> 01:09:38.160
-Yes.
-Any videos?

01:09:39.920 --> 01:09:41.640
-I thought...
-What? I can’t hear you well.

01:09:42.320 --> 01:09:44.520
I wondered if you watched videos.

01:09:44.960 --> 01:09:49.360
Yes, he’s always got
the remote control with him.

01:09:49.520 --> 01:09:52.760
I thought of you yesterday.
I’ll email you

01:09:52.960 --> 01:09:57.520
or send you a WhatsApp link
to a one-hour documentary

01:09:58.040 --> 01:10:02.880
about David Bohm,
a legend in quantum physics,

01:10:03.000 --> 01:10:04.560
explaining consciousness.

01:10:05.200 --> 01:10:09.440
He evolved, at the end of his life
he met Krishnamurti,

01:10:09.640 --> 01:10:13.040
and combined spirituality
with quantum physics.

01:10:13.320 --> 01:10:15.200
Well, it’s incredible.

01:10:15.320 --> 01:10:20.080
I loved it. I couldn’t stop watching.
It’s an hour long, but you’ll like it.

01:10:21.280 --> 01:10:23.200
-You’ll like it.
-Send it, please.

01:10:23.320 --> 01:10:27.160
At the end, the video shows

01:10:27.320 --> 01:10:31.040
the day he died.
He was fine, working,

01:10:31.280 --> 01:10:33.360
when he calls his wife to say:

01:10:33.560 --> 01:10:34.880
"I’m on the verge of...

01:10:35.360 --> 01:10:39.120
I can sense that I’ve discovered
something marvelous.

01:10:40.200 --> 01:10:44.640
I’m on the verge
of a colossal discovery.”

01:10:45.960 --> 01:10:47.800
And poof! He was gone.

01:10:48.320 --> 01:10:49.600
How awful!

01:10:49.720 --> 01:10:51.640
He realized he would travel

01:10:52.520 --> 01:10:55.400
to see what things
are made of from the inside.

01:10:55.520 --> 01:10:58.760
He felt an enormous curiosity
to understand the world.

01:10:58.880 --> 01:11:02.760
Physics, matter, particles,
consciousness...

01:11:02.880 --> 01:11:04.880
Marvelous.
I’ll send it to you later.

01:11:06.120 --> 01:11:07.280
Okay, Fernando.

01:11:07.400 --> 01:11:11.920
You’re a bit fussy today.
I should tell you that I love you.

01:11:12.800 --> 01:11:14.760
-Okay.
-I want you to know it.

01:11:14.880 --> 01:11:17.440
I should tell you it’s mutual.

01:11:17.720 --> 01:11:22.400
You don’t look bad,
just a bit tired, a bit weak,

01:11:22.680 --> 01:11:25.760
perhaps intoxicated from medication.

01:11:26.200 --> 01:11:29.360
That may change a bit perhaps...

01:11:29.800 --> 01:11:35.320
Don’t you fucking dare leave
before I get to Uruguay...

01:11:35.880 --> 01:11:37.920
No, no way.

01:11:38.040 --> 01:11:40.760
-He’s waiting for you, Benito.
-No way.

01:11:42.400 --> 01:11:46.160
Talk to Laura
about rescheduling my trip.

01:11:46.760 --> 01:11:50.320
I can see you look like David Bohm,
keen to explore,

01:11:50.480 --> 01:11:53.520
to enter the mystery
through the main door.

01:11:53.680 --> 01:11:55.320
I’m looking forward to entering.

01:11:55.800 --> 01:11:57.680
But I don’t...

01:11:57.880 --> 01:12:00.480
My number hasn’t been called yet.

01:12:02.800 --> 01:12:06.120
But let's seize the day while I'm alive.

01:12:06.680 --> 01:12:09.400
I'm signing off now, Benito.

01:12:13.320 --> 01:12:15.240
We'll talk whenever you say.

01:12:15.400 --> 01:12:17.360
Listen...

01:12:19.680 --> 01:12:23.480
-Inés, you’ve got my WhatsApp number, right?
-Yes, of course.

01:13:10.600 --> 01:13:11.960
Hello Inés.

01:13:12.800 --> 01:13:14.480
I’d like to say...

01:13:16.680 --> 01:13:19.640
It’s a hard time for everyone.

01:13:19.920 --> 01:13:23.320
A time when sadness blends

01:13:23.880 --> 01:13:27.960
with the pain of watching him go,

01:13:28.440 --> 01:13:31.080
but also the pride of having met him,

01:13:31.200 --> 01:13:33.080
of having loved him,

01:13:33.240 --> 01:13:36.640
and having shared this time with him.

01:13:37.200 --> 01:13:39.560
Your son Salvador moved me,

01:13:39.720 --> 01:13:44.640
when he told me that Fernando,
in this confused state of mind,

01:13:44.880 --> 01:13:46.600
looked at the ceiling and said:

01:13:47.200 --> 01:13:48.880
"There’s a door there".

01:13:49.040 --> 01:13:51.920
At the same time,
he realized he was hallucinating.

01:13:52.360 --> 01:13:54.680
Who knows, Inés?

01:13:58.160 --> 01:14:01.600
I’m deeply moved but won’t crack.

01:14:03.720 --> 01:14:06.560
You all have the right to rest,
especially him.

01:14:06.680 --> 01:14:09.200
Right now, it’s natural

01:14:10.800 --> 01:14:13.840
that he let go,
accept, and surrender himself,

01:14:14.080 --> 01:14:18.760
let himself go, because what awaits
is more than he can imagine.

01:15:02.440 --> 01:15:08.600
THE CONVERSATIONS BETWEEN FERNANDO AND ENRIC
LASTED FOR 9 MONTHS.

01:15:11.760 --> 01:15:17.800
FERNANDO DIED AT HIS HOME ON SEPTEMBER 3, 2020.

01:15:37.960 --> 01:15:46.040
TWO YEARS LATER, ENRIC WAS ABLE TO TRAVEL TO URUGUAY
TO MEET WITH THE FAMILY, FRIENDS,
AND HEALTH CARE STAFF WHO CARED FOR FERNANDO.